Section C

At the beginning of January 2021, the CHERRIES Project is launching in the three territories of Örebro (Sweden), Murcia (Spain), and Cyprus the Call for solutions, mainly addressed to SMEs, Start-ups, and innovators able to co-create in a participative way a solution to the needs identified in the previous step. The text of the Call contains the selection criteria of the proposal, the template to be filled by the participants, and information on the way to participate and timing. The launch of the Call is being accompanied by a communication campaign and the organisation of meetings in the three territories.

Part of interest: The entire document.

Target groups: Policymakers, RPOs, Innovation Business, Providers, Start-ups

Socialchallenges.eu is a Platform aiming at creating a marketplace where actual social challenges can meet powerful and innovative solutions, where Public, Private and Third Sector Stakeholders can upload social and environmental challenges to receive innovative solutions from European innovators, start-ups, and SMEs.

Part of interest: See in particular the challenges related to health and disabilities, and those related to aging.

Target groups: Policymakers, RPOs, Innovation Business, CSOs

This is the text of the open Call for solutions Platform including eligibility criteria, calls details, and evaluation criteria set up the Social Challenges Innovation Platform.

Part of interest: The entire document.

Target groups: Policymakers, Providers, Professionals, Patients and CSO, Payer, RPOs, Innovation Business

This is the template for the submission of solutions defined and used in the Social Challenges Innovation Platform.

Part of interest: The entire document.

Target groups: Innovation business, RPOs

The document contains the instructions to apply for solutions and describes the functioning of the platform used by the Social Challenge Innovation Platform project in the 2^nd cut-off date, in 2018. Social Challenges Innovation Platform has foreseen two elements in the call for solution: Value proposition for Challenge Owners and Solution providers.

Part of interest: The entire document.

Target groups: Innovation Business, RPOs, Providers, Professionals

The resource is the Matrix set up and used by the Social Challenges Innovation Platform Project (Deliverable D2.3) to assess proposed solutions to a specific challenge.

Part of interest: The entire document.

Target groups: Providers, Professionals, Patients, RPOs, Innovation business

This document is an example of an Open Call for companies for co-creation of digital health solutions to challenges identified by health professionals, published within the framework of the InDemand Project which is a reference experience of demand-driven innovation for CHERRIES too. InDemand set up and tested a new co-creation model where healthcare organisations (Challengers) and companies (Solvers) co-develop digital health solutions. The first phase of the Model is focused on the need identification by the Challenger (Healthcare organisation) by the launches of a “Call for challenges” in several European regions. The second phase of the Model is the launch of the Call for solution, which is referred to the link, regarding the call launched in Murcia in 2019, containing the description of the 4 challenges selected among the around 60 challenges identified by health professionals within the SMS-Servicio Murciano de Salud (Spain).

Part of interest: The entire resource.

Target groups: Providers, Professionals, RPOs, Innovation Business

These are the materials defined and used by InDemand Project in 2018 in Open the Call for companies for solution in Murcia to solve health issues and challenges identified by healthcare professionals (text of the open Call and the related document as application forms, guide for applicants, administrative documents, etc.).

Part of interest: The entire document.

Target groups: Innovation Business, RPOs, Providers, Professionals, Start-ups

The resource includes the Guide for applicants of the InDemand project set up and used in the 6th Open Call Paris 2nd for solutions and the other documents related to the call (template to be used, declarations to be signed, etc.). In particular, the Guide describes the challenges to consider, the criteria for applying, the evaluation criteria, the process of selection, the co-creation activities.

Part of interest: The entire document.

Target groups: Providers, Professionals, RPOs, Innovation Business

It is an initiative ANCES Open Innovation focused on the identification of need/challenge and a call for solution to SMEs and innovation businesses able to address such need/challenge. The website presents also the form to be filled for participating in the initiative ANCES Open Innovation. The tool is in Spanish.

Part of interest: The entire website and in particular Section “Participar”.

Target groups: Policymakers, RPOs, Innovation Business

The present resource (Deliverable D4.1. “Open Call results”, 2019) illustrates the aim and the procedure implemented for the launch of an Open Call, addressed to Science Shop entities, within the framework of the InSPIRES project. This Call was aimed at providing financial support for the implementation of participatory research projects focused on RRI in health and environmental issues. InSPIRES brings together practitioners and experts to co-design, jointly pilot, implement, and roll-out innovative models of participatory research projects for the Science Shops target. The InSPIRES models integrate RRI, Open Science, and Impact Evaluation to open the research process up in a more strategic way to civil society and other stakeholders.

Part of interest: See in particular the Annex 1 “Terms and conditions of the Open Call”.

Target groups: Science shops and RPO’s, Policymakers, CSOs, Innovation business, Citizens/Patients

Challenge Driven Innovation (CDI) is a research and innovation-funding programme developed by Vinnova’s Swedish Innovation Agency to fund collaboration in research and innovation that address societal challenges. The program foreseen inclusion of different actors in the project; supports a problem-oriented and demand-driven approach that necessitates anticipation and reflection; encourages learning by doing and responsiveness and capacity of changing and adapting. Gender equality is an important element of CDI.

Part of interest: The entire document.

Target groups: Payers, RPOs, Innovation Business, Policymakers

This document, produced by the King Baudouin Foundation and the European Foundations Award for RRI (EFARRI), describes the Award for RRI 2016 by a call for projects on RRI in the European Research Area. The EFARRI aims to identify research groups that have successfully incorporated methods to align research with the needs of society and contributed towards the development of a smart, inclusive, and sustainable society. The document describes 8 steps of the Award, the content of the call for project, the selection procedure, the composition and work of the Jury, the Award Ceremony, and dissemination activities. The Award incorporates RRI dimensions among the criteria for selecting the projects.

Part of interest: The entire document and in particular Pp. 6-14 for the methodology of the Award. The document presents also the 15 RRI finalist practices.

Target groups: Payers, RPOs, Innovation Business, CSOs, Higher Education Institutions, Policymakers

The NWO − Dutch Council Research in the framework of its RRI program, is carrying out from 2018 a series of initiatives using RRI dimension as criteria for a call for proposals aimed at promoting interdisciplinary collaboration between researchers from the humanities, natural sciences, engineering, and social sciences. One of these initiatives is IMDI Innovative Medical Devices Initiative. IMDI is a strategic public-private partnership that was established in 2010. It specifically focuses on the development and application of medical technology that tackles the increasing shortage of healthcare personnel and safeguards accessibility to healthcare. NWO Responsible Innovation Programme is an important component in various IMDI calls paying special attention to social and ethical issues.

Part of interest: The entire document.

Target groups: Payers, RPOs, Innovation Business, Policymakers

CREW, Codesign for REhabilitation and Wellbeing, is a research project developed by Fondazione Cariplo with the scope to create innovative technological solutions in the motor and cognitive rehabilitation field and aimed to the facilitation of the social inclusion of people with permanent, temporary, or age-related disabilities. CREW was shaped on the European model of RRI, using co-design as a methodology to express and identify the needs and find the related solutions. This was carried out by five project laboratories dedicated to: sport and disability, school integration and autism, neuro-motor paediatric disabilities, ambient living to maintain life autonomy, and for a new life autonomy. The resource is in Italian.

Part of interest: The entire document.

Target groups: Innovation business, RPOs, Patients, CSOs, Providers, Professionals

This resource, set in the framework of CAREABLE project (Deliverable D2.1), presents a selection of 45 best practices in 9 fields of application in Open Healthcare, sourced from online repositories. The Open Healthcare map shows various existing platforms where makers share open-source solutions. It shows a variety of complexity and relevance of repositories online.

Part of interest: See the entire document.

Target groups: Providers, Professionals, Patients, CSOs

This is the interactive tool to assess the institution’s support for public engagement, provided by the National Co-ordination Centre for Public Engagement. Besides the tool, the website contains also resources on public engagement.

Part of interest: The entire document.

Target groups: Policymakers, Providers, RPOs, Business Innovation, High Education Institution

The aim of the toolkit, set up in the framework of the EU project PE2020, is to provide easy, rapid and guided access to practical and theoretical knowledge on strategies and approaches to public engagement with science. The toolbox is composed of four sections: section A strategic framework; section B methods and tools; section C, institutional anchorage; section D, societal anchorage. In particular, part B contains inputs and resources about: types of public engagement and connections with organisational processes; designing PE initiatives; implementing PE initiatives; monitoring and evaluation.

Part of interest: See also PE2020 Catalogue of Public engagement initiative and the Inventory of PE initiatives.

Target groups: Policymakers, Patients and CSOs, Providers, RPOs, Innovation Business, Intermediaries

* This resource is available on request, contacting the CHERRIES.

This is a practical guide set up by the Project EFFECT for communication and public engagement activities on the future and emerging technologies (2018). It contains the description of 10 methodologies for public participation in science and 4 methodologies for younger involvement and a form on evaluation procedures.

Part of interest: The entire document.

Target groups: Policymakers, Patients and CSOs, Providers, Payers, Intermediaries, RPOs

The PROSO Project aims at advancing insights into factors that influence the engagement of two types of societal actors, namely third sector organisations (TSOs) and non-organized citizens. This document deals with the engagement of the latter. In particular, it contains a description of how to design a citizen panel. The resource (Deliverable D4.1, 2016) is also useful for those stakeholders engaged in promoting the participation of single citizens.

Part of interest: The entire document.

Target groups: RPOs, Providers, Professionals, Patients, Citizens, CSOs, Policy Makers, Higher Education institutions

The catalogue is an online platform, and it is one of the products of Engage2020 Project. The catalogue gives an overview of 57 methods that can be used for engaging society in research and innovation. It contains detailed factsheets on all the collected methods, providing information such as objectives, background, different levels of research and innovation activity, and examples of use. The catalogue has a search engine. The content of the catalogue has been also published in the Deliverable D3.2. “Public engagement methods and tools”.

Part of interest: Each user might choose the method of interest.

Target groups: Policymakers, RPOs, Innovation Business, CSOs, Higher Education Institutions, Payers, Providers

Citizen science models of public participation in scientific research represent a growing area of opportunity for health and biomedical research, as well as a new impetus for more collaborative forms of engagement in large-scale research. However, this also surfaces a variety of ethical issues that both fall outside of and build upon the standard human subjects concerns in bioethics. This article (by Wiggins, Wilbanks, 2019) provides background on Citizen science, examples of current projects in the field, and a discussion of established and emerging ethical issues for Citizen science in health and biomedical research.

Part of interest: The entire article.

Target groups: RPOs and Scientists, CSO and Citizens, Policymaker, Business innovation

This article (by Palmer et al., 2017) is focused on the usefulness of Citizen science in health. Traditional surveillance tools are limited by jurisdictional boundaries and cost constraints. The article shows how a scalable Citizen science system can solve this problem by combining citizen scientists’ observations with expert validation and correcting for sampling effort. The system described in this article provides accurate early warning information about the Asian tiger mosquito (Aedes albopictus) invasion in Spain collected using Citizen science, providing data well beyond those available from traditional methods, and vital for public health services.

Part of interest: The entire article.

Target groups: RPOs, CSOs

This is the Toolkit drafted by the European Patient Forum. Starting from a definition of patient empowerment and related concepts, the document provides key advocacy tools of patient empowerment.

Part of interest: The entire document.

Target groups: Providers, Professionals, Patients, CSOs

This is a resource made by the PARADIGM Project. The Toolbox contains co-created recommendations, tools, and relevant background information to make patient engagement in medicines development easier for all. In particular, the Toolbox is articulated in three main areas: planning patient engagement; conducting patient engagement; reporting, and evaluation. The Toolbox includes the following resources: evaluation and monitoring framework; code of conduct for patient engagement; guidance on patient dialogue in the early stage of patient engagement; guidance on managing competing and conflicts of interest.

Part of interest: The entire toolbox.

Target groups: RPOs, Business Innovation, Providers, Professionals, Patients, CSOs

This Matrix (developed by Smits, Klem, and Ketelaar, Centre of Excellence for Rehabilitation Medicine Utrecht) has been developed to promote collaboration with patients (from the age of 12) in projects and research. The Guide contains info about the ‘what’ (roles, phases, and activities of patient involvement in a project) and the ‘how’ (principles for having dialogues and concrete recommendations for using the Matrix). The Matrix identifies 6 roles: listener; co-thinker; advisor; partner, decision-maker. The Matrix singles out three phases: preparatory phase; execution; implementation.

Part of interest: The entire document.

Target groups: Policymakers, Providers, RPOs, Patient, Professionals

The aim of PREFER Project (to which this resource is connected) is to strengthen patient-centric decision-making throughout the life cycle of medicinal treatments by developing expert and evidence-based recommendations on how patient preferences should be assessed and inform decision making. The project is identifying 15 critical decision moments in which it is important to include patient preferences in the medical product lifecycle. Patient preference (PP) information is currently not routinely considered one of the requirements for decision-making. The resource (by Whichello et al., 2020) proposes a road map for including patient preferences in the life cycle of medical treatment.

Part of interest: The entire article.

Target groups: RPOs, Innovation Business, Patients, Professionals, Providers

This is an article (by Jordanou, 2019) on the obstacles met by SMEs in involving the patient in research. This issue is examined on the basis of 18 in-depth interviews with private healthcare industry representatives from across Europe in companies focusing on developing medical device technology. Findings suggest that SMEs are reluctant to undertake research involving patients, especially in the early stages of the research and innovation process. For some SMEs, this is due to concerns about the dangers of raising expectations they cannot meet, while for others the main concerns are increasing costs and producing less competitive products. Recommendations in this respect are also provided.

Part of interest: The entire article.

Target groups: CSOs, Innovation business, Patients, RPOs

The Guidelines (set up in the framework of Multiact Project) propose a roadmap to capture the ‘experiential knowledge’ of patients, to better understand how to draw on their experience and use the experience constructively for co-creation purposes. The roadmap consists of four activities: setting up an Engagement Coordination Team with trained figures; selecting the research steps where patient engagement is instrumental to meet the project’s mission/agenda; developing an engagement plan for each research identified steps; selecting the indicators to be used to measure the success and effectiveness of this engagement. 7 steps for patient engagement are foreseen: Translation to community; Setting research priorities; Breaking down boundaries between patients and stakeholders; Research design and plan; Research evaluation; Steering institutions; Research execution.

Part of interest: The entire document.

Target groups: Policymakers, Providers, Professionals, Patients, RPOs, Innovation Business

This a Guide drafted by the European Commission on the use of social media on health and vaccination communication, particularly relevant in the context of Covid-19 pandemic. The Toolkit provides suggestions on how to use social media for correct information and communication on vaccination. In particular, it suggests 7 steps for engaging and starting communication activities on health issues. Communication is a basic element of public engagement.

Part of interest: The entire document.

Target groups: RPOs, Professionals, RPOs, Innovation Business, Media

IMI is a Public-Private Partnership initiative, aimed at improving health by speeding up the development of, and patient access to innovative medicines, particularly in areas where there is an unmet medical or social need, and by facilitating collaboration between the key players involved in health research. Citizens are invited to participate in the PP IMI by becoming a partner in a project or member of project advisory committees or associate partner or by proposing ideas and suggestions. IMI launches calls for proposals and publishes draft topics texts on future topics. The calls require the participation of citizen and patient organisations.

Part of interest: See the general overview and the call documents.

Target groups: RPOs, Innovation business, Policymakers, CSOs, Patients, Payers, Providers, Professionals, Intermediaries

In the framework of the Project U-BIOPRED has been draft the guidelines on successful involvement of patients in the EU project. U-BIOPRED Project is aimed to speed up the development of better treatments for patients with severe asthma. Patients (including also caregivers and patient organisations) were involved in the consortium and participated with their experiences to the outcomes of the Project. Patient involvement can optimise the ethics, relevance, accountability and transparency, communication, promotion, and implementation of research outcomes. Patient involvement groups might have different forms, all able to bring their own experience to support a project.

Part of interest: The entire document.

Target groups: RPOs, Innovation business, Providers, Patients, CSOs

The case study (by Navda, 2018), linked with Orbit project, describes how people with dementia and their carers have been involved in several different and creative ways in the initial development and testing of a working prototype of a computer-based planning tool for people with dementia and their carers. The tool, called My Brain Book, aims to record information about the person with dementia in order to produce a care plan that is created jointly between the person with dementia and their families and shared easily with a range of professionals. Engagement activities included: a parallel priority-setting event, focus groups, involvement in design workshops, and testing of the prototype.

Part of interest: The entire document. It contains also a description of the way by which people with dementia and their family and caregivers have been involved.

Target groups: RPOs, Providers, Professionals, Patients, CSOs

¡Pasa la voz! is a raising awareness project about Chagas disease to improve access to diagnosis and treatment. It was among the finalists of the EFARRI-European Foundations Award for RRI in 2016. EFARRI aims to identify research groups that have successfully incorporated methods to align research with the needs of society and contributed towards the development of a smart, inclusive, and sustainable society. The project carried out by the ISGlobal team foresees the involvement of the different stakeholders since the beginning of the activities.

Part of interest: The entire document.

Target groups: Providers, Professionals, Patients, CSOs

This case study is focused on telemedical applications in the area of diabetes care through the case of GlucoTel™, a telemonitoring system developed by BodyTel™. It links the company’s activities to aspects of RRI such as addressing societal challenges, stakeholder engagement, legal requirements, and open access. BodyTel™ engages stakeholders such as patients and caregivers during its development processes to improve the treatment of chronic diseases and contribute to a higher quality of life for patients. These were the 5 stakeholder groups considered: patients & family, caregivers & medical advisers, health insurance companies; medical technological & pharmaceutical companies; integrators of sensors and services.

Part of interest: The entire document.

Target groups: Patients, Providers, Professionals, RPOs, Innovation Business

The Guide (drafted in the framework of TeRRIFICA project, Deliverable D4.1., 2019) describes tools, activities, and methodology for stakeholder engagement and co-creation for climate change, on the basis of the pilots carried out by TeRRIFICA. In particular, the focus is on how addressing possible conflicts, challenges on public engagement. The document might be useful for stakeholder mapping and engagement (section A) and for co-creation activities (section C). Each part contains examples based on TeRRIFICA experiences.

Part of interest: See section 2.

Target groups: Policymakers, CSO, RPOs, Innovation business

Repository of toolkits on public engagement and science communication set up by EU projects on public engagement, citizen engagement, and co-creation. The resources of this platform might be useful in all the phases of implementation of CHERRIES approach.

Part of interest: The entire platform.

Target groups: Policymakers, RPOs, Innovation business, Higher Education institutions, CSOs, Payers, Providers

The document describes a pool of activities for co-creation labs and Open Days (SISCODE Project, Deliverable D7.3, 2019) that labs can use or take inspiration from to create an interactive and engaging programme for local audiences. The activities selected and described are: 12 ice-breakers, 14 dialogue activities, and 9 engagement activities.

Part of interest: The entire document.

Target groups: Policymakers, Innovation business, RPOs, CSOs

This is a PROSO Project support tool for promoting engagement of citizens and third sector actors in research and in research and innovation policy. In particular, the document identifies lowering barriers and innovating policies and practices for addressing such barriers, with different options. These are six barriers: lack of relevance; lack of impact; lack of trust and critical views of others; lack of knowledge and skills; lack of time and finances; and lack of legitimacy. Different options are provided for different actors, namely policymakers and governmental agencies, research funding organisations and research councils, public and private research organisations and (other) engagement performing organisations, and third sector actors.

Part of interest: The entire document.

Target groups: Policymakers, CSOs, Patients, RPOs, Innovation Business, Payers

The document was drafted in the context of the ACT for gender equality Project Community of practices (CoP). The toolkit describes 20 different participatory methods, online methods, and visual methods. It shows how and which tools and methods the CoPs might operate, develop, implement gender equality plans (GEP), gender equality (GE) measures and activities, and facilitate institutional change in relation to GE in HE and R&I. Such methods might be useful in implementing the 6 steps for the process of setting up, implementing, monitoring and evaluating GEPs.

Part of interest: The entire document, and in particular chapters #7, #8 and #9.

Target groups: RPOs, Higher Education Institutions, CSOs, Payers, Innovation Business

This document shows the detailed stakeholder mapping and the engagement strategies process that Careables project (Deliverable D1.1, 2018) has applied.

Part of interest: See in particular section 5.5.

Target groups: Providers, Professional, Patients, CSOs

SPARKS is an awareness-raising and engagement project to promote RRI across 29 European countries (EU members plus Switzerland and the UK). This resource focused on participatory activities, and it is articulated in the following parts: rethinking innovation together; innovative participatory activities; capturing the scene (guidelines to plan of the work, establishment of local partnerships; different kinds of activities, templates for the organizers). The resource contains also experiences and practices.

Part of interest: See the part on Guidelines for implementing innovative participatory activities on RRI (science cafés, pop-up Science Shops, incubation activities, and scenario workshops).

Target groups: Policymakers, RPOs, Patients and CSOs, Innovation business

This training kit, set up in the framework of Careable project, provides all the practical information for people that need to set up an event series and guide the process by the organisation of a prototyping series. It gives guidelines and tips on: how to find partners to cooperate with, how to gather a diverse group of participants, how to set up the different stages of the prototyping series, how to document the overall process and resulting products on Careables.org. This is a useful tool to create a fruitful environment in which organisations can successfully work together and develop freely and design solutions, based on the needs of individual patients.

Part of interest: See in particular the Appendix #13 “Healthcare co-design toolkit”.

Target groups: Providers, Professionals, Patients, CSOs

The Co-Creating Welfare Training Course aims to enable professional practitioners within the health and social welfare sector to create, implement, and evaluate co-creating processes with the citizens benefitting from the welfare services of their organisation. The Training Course is built around 4 training themes that are: Creating a common understanding of co-creation; Initiating the co-creation process through collaborative problem formulation; Managing the co-creation process; Dissemination and communication of the co-creation process and its results. There is also an online Tool that contains a report with all the material of the training course, videos, the deck of co-creation tool cards. Different tools are proposed that might be used for different a kind of activities: brainstorming; problem identification; design solution, etc.

Part of interest: The entire web tool.

Target groups: Providers, Professionals, Patients and CSOs

The first episode of the “CHERRIES webinar series 2020 Exploring responsible healthcare ecosystems in Europe” was devoted to a reflection on “Regional innovation ecosystems for healthcare”, with the contribution of Wouter Boon (University of Utrecht) and Myriam Martin (Ticbiomed; InDemand Project). During the webinar was discussed the role of users in the healthcare innovation process; how demand/need driven innovation approaches can result in improved healthcare ecosystems; and which are the key issues to be considered when launching a co-creation process.

Part of interest: The entire webinar.

Target groups: Policymakers, RPOs, CSO, Innovation Business, Funding organisations, Intermediaries, Higher Education Institutions

CRISH (Co-CReating Innovative Solutions for Health) main objective is to bring together key stakeholders of the health sectors, including patients, for learning how to co-create innovative processes, products or services for health improvement and jointly anticipating emerging trends on health and ageing. CRISH is a short course providing knowledge, skills, and tools on patient experience methodology (XPA), responsible research and innovation components (RRI), entrepreneurship elements (ENT), and reciprocity and co-design methods (RcD) to a variety of health stakeholders. CRISH trains health professionals, home caregivers & researchers in identifying, with patients, critical points for future research, re-design of clinical services through the patient experience methodology, and identify ideas to pursue the development of innovative solutions.

Part of interest: All the links.

Target groups: Providers, Patients, Professionals, RPOs, Innovation business.

WE Health is an EIT Health Campus programme designed to enhance the participation of women in health innovation and entrepreneurship. WE Health empowers female health innovators by providing training specifically tailored to their needs, offering inspiration and support to help them advance in their professional careers. WE Health also aims to raise awareness of the positive economic and social impact of gender diversity in health innovation, while generating new ideas that promote innovation across the entrepreneur community in a more balanced way.

Part of interest: The entire platform.

Target groups: Innovation Business, RPOs, Higher Education Institutions, CSOs

This is the Deliverable D5.1 of the InDemand Project describing the co-creation activities and business support in the three regions of Murcia (Spain), Oulu (Finland), and Paris. In particular, the Report describes the third phase of InDemand, in which Challenger and Solver develop together a new healthcare solution. Solver receives business advice from the Supporter. These activities facilitate the co-creation between Challengers and Solvers as well as the delivery of business support. At the end of co-creation, Funder oversees the Evaluation and Payment process. This phase is organised in the following steps: preparation; management of co-creation; management of business support; evaluation and payment; assessment and contribution to the knowledge base.

Part of interest: The whole document.

Target groups: Innovation business, RPOs, Providers, Professionals, Patients, Payers

The web tool describes the demand-driven co-creation approach used by InDemand Project in the three pilots in Spain (Murcia Region), Finland (Oulu Region), and France (Paris Region) and within InDemand Community, and by which is possible to access various resources. According to this model, healthcare organisations and companies co-create digital health solutions with the economic support of public regional funds. inDemand applies at the same time demand-driven and co-creation approaches.

Part of interest: The entire tool.

Target groups: Providers, Professionals, Patients, RPOs, Innovation business

The Guide (drafted in the framework of TeRRIFICA project, Deliverable D4.1., 2019) describes tools, activities, and methodology for stakeholder engagement and co-creation for climate change, on the basis of pilot projects carried out by TeRRIFICA. In particular, the focus is on how addressing possible conflicts and challenges on public engagement. The document might be useful for stakeholder mapping and engagement (section A) and for co-creation activities (section C). Each part contains examples based on TeRRIFICA experiences.

Part of interest: Pp. 28-35 for co-creation; Pp. 36-50 methods of engagement and co-creation. Challenges to engagement and co-creation Pp. 51-73.

Target groups: Policymakers, CSO, RPOs, Innovation business

This is the Handbook on co-creation and business support services drafted and used during the third phase of the InDemand Project on co-creation and business support management. The Handbook describes the support activities that are being deployed during the co-creation phase by a mentorship and coaching program. It describes also the activities for the development of the solution by a co-creation health lab and a business modelling support (definition of the business model; go-to-market strategy; funding).

Part of interest: The entire document.

Target groups: Innovation business, RPOs, Policymakers, Patients, CSOs, Providers, Professionals

This is a Manifesto (in Italian and English) set up by Open dot in collaboration with TOG Fondazione Together to Go, on co-design on health and care. The Manifesto contains 8 principles to follow in co-design activities to create new solutions by generating innovation. The Manifesto allows to adapt, personalise, and even create more effective solutions from scratch, taking into account the fact that people have not unique tastes and necessities. Citizens have not to be seen just as patients of a certain pathology. The principles are: listen and observe, speak the same language, share the needs, think and design together, prototype, share, and replicate and communicate. The Manifesto is linked with a toolkit.

Part of interest: The entire document.

Target groups: RPOs, Innovation Business, CSOs, Providers, Patients, Professionals

This is the Deliverable D1.2 of the SISCODE project. The document contains reviews of literature respectively dedicated to: a comparative analysis of co-creation in policy-making at large, and in STI policy making in particular; a comparative analysis of co-creation methodologies and tools that can be applied in RRI practices.

Part of interest: In particular the chapter 4 on design for policymaking, chapter 5 on the co-creation in RRI practices, and annex 1.

Target groups: Policymakers, Payers, RPOs, Innovative Business, Providers, Patients, CSOs

The SISCODE Toolbox (2019) aims to facilitate the design and implementation of co-creation journeys for the SISCODE laboratories, focussing on better understanding and prioritisation of the particularities of each context. The Toolbox contains a selection of existing tools for the development of the design-based co-creation process from the context analysis, to reframe the problem, to envision and ideation of a solution, the development of a prototype and its experimentation in a real-world context.

Part of interest: The entire document and in particular the part on Envision and Ideation of the solution.

Target groups: RPOs, CSOs, Innovation Business, Policymakers

This catalogue, set up in the framework of Cimulact Project (available online and in pdf format − 2018), contains a description of methods for involving different groups of stakeholders and citizens in participatory research agenda-setting. Those methods are: citizens’ vision workshop; vision clustering workshop (extract commonalities or underlined needs from visions); research agenda camp (co-creation workshop): from commonalities or needs to research programme scenarios; who, what & why method; consensus workshop; enrich by co-design; prototyping research programme scenarios; the caravan; group interview with a co-design session; facilitated stakeholder working group; word cafe. The catalogue contains also a glossary, a table on the usefulness of citizen/stakeholder participation and guidelines on recruitment, and info on logistics. The catalogue is useful also for co-creation and prototyping activities.

Part of interest: All the resources, and in particular those for co-creation and prototyping.

Target groups: CSOs, Policymakers, RPOs, Innovation business, Payers, Providers

Digital Health Europe will provide comprehensive, integrated, and centralised support to the Digital Health and Care Innovation initiative in the context of the Digital Single Market Strategy. The project’s approach involves a number of actions that will boost innovation and advance the Digital Single Market priorities for the digital transformation of health and care (DTHC). The catalogue contains practices of digital solutions in healthcare, including those related to the management of healthcare for Covid-19 pandemic. This resource might provide useful information about innovation policies and good practices.

Part of interest: The entire catalogue.

Target groups: Policymakers, Providers, Professional, Patients, CSOs, RPOs, Innovative business, intermediaries, Payers

This guide of Nesta Foundation (2017) explores the ways that companies, governments and researchers around the world are collaborating to improve the innovation process in health, from the way that problems are identified to how new products and services are created and then adopted by providers of healthcare. The guide describes three steps of innovation: problem identification; invention; adoption and diffusion; cross-cycle initiatives. Aims of this innovation guide are: making health innovation more efficient; informing health innovation with a better understanding of the health system and patient/citizen needs; making health innovation more democratic. In all the innovation phases it is foreseen the involvement of citizens and professionals.

Part of interest: The entire document and in particular from Pg. 10 to 65.

Target groups: Policymaker, RPOs, Innovation business, CSOs, Providers, Professionals

The EU-funded GoNano Project enables co-creation between citizens, civil society organisations, industry, researchers, and policymakers across Europe to align future nanotechnologies with societal needs and concerns. GoNano co-creates with different stakeholder novel suggestions for future nanotechnology products. On the portal, there are: a knowledge database, several co-creation tools developed by profit and non-profit organisations, and examples of co-creation initiatives with citizens and stakeholders on nanotechnology in health.

Part of interest: See all the co-creation tools.

Target groups: Policymakers, Providers, Professionals, RPOs, Innovation Business, CSOs

This is a resource tied with the eHealth EU Funded Initiative. In February 2017, Hospital Bernal, a private hospital located in the Region of Murcia (Spain), asked eHealth HUB to help them to identify and evaluate digital solutions to remotely monitor low-complexity chronic patients from their homes. Hospital Bernal was particularly interested in monitoring at least Chronic Obstructive Pulmonary Disease (COPD), Congestive Heart Failure (CHF), and Diabetes. eHealth HUB’s first Solution Match was launched and a European-wide public call for solutions was opened. This Solution Match report features and compares the solutions of 71 responses to this call. The document accompanies the call for proposals.

Part of interest: The entire document.

Target groups: Innovation Business, RPOs, Providers, Professionals, Patients, Payers

This is an article (by Chowdhury, 2012) on Hacking Health experience held in Canada in 2012. The hackathon was focused on social innovation (with at least an education aim) more than technical innovation. The approach is aimed to improve healthcare to pair technological innovators with healthcare experts to build realistic, human-centric solutions to front-line healthcare problems. The hackathons may be focused directly on launching apps. From the onset, Hacking Health was designed to catalyse entrepreneurial teams and projects to address issues in healthcare through business models.

Part of interest: The entire article.

Target groups: Innovative Business, Start-ups, RPOs, Professionals

This is a chapter of Technologies for Development (by Mantzavinou et al., 2018) describing the experiences of MIT Hacking Medicine, a group founded in 2011 at MIT, aims to energize the healthcare community and accelerate medical innovation by carrying out co-creation through health hackathons. These 1- to 3-day events bring together diverse stakeholders to solve pressing healthcare needs. The hackatons aim to generate a network of individuals compelled to make healthcare better by exchanging ideas, knowledge, and skills in the long term. The article describes the activities needed to prepare and implement an hackaton.

Part of interest: The entire article.

Target groups: Providers, Professionals, RPOs, Innovation Business, CSOs

NESTORE is an innovative personalised ICT coaching system to support healthy ageing, based on co-design principles. The NESTORE system aims at putting the user at the core of the design process in order to address one of the biggest challenges of our century: “how to develop technologies that are useful and usable for the target users?”. This system has been defined by a co-design process used for informing technologists on the user’s needs and desires. The need collection of users is described in the deliverable “D7.1. Needs, values and suggestions to Co-design”; the further co-design for improvements the prototype is described in deliverable D7.3 Report on end-user improvement for prototypes, related to the validation initiatives with stakeholders carried out in 3 EU countries. The website contains also use cases and illustrations of the technology.

Part of interest: See Deliverables D7.1 and D7.3.

Target groups: Policymakers, Providers, RPOs, Business Innovation, High Education Institutions

This is a practical guide on social labs (by Hassan, 2015). The Field Book describes what is a social lab, how to implement it, considering its three characteristics: as a laboratory, a space for multi-disciplinary collaboration and a strategy for addressing a complex challenge. In particular, the Field Book attempts to support practitioners who are interested in building social labs. It provides practical, step-by-step guidance as to how to design spaces, run processes and build the team requires to run labs. The approach suggested is to work consciously on the design of each stack and cultivate each of these stacks over time.

Part of interest: The entire document.

Target groups: Innovation business, RPOs, Policymakers, Patients, CSOs, Providers, Professionals, Intermediaries, Higher education institutions

The aim of this resource (set up in the framework of CAREABLE project) is to share knowledge about organising co-creation sessions for making healthcare solutions and enabling others to organise such sessions in which the innovative capacities of different people can lead to meaningful healthcare innovation. This resource should be used as a guidebook. It might be used to decide on a setup for tools, but also for templates for exercises help people in developing the healthcare solution that they feel is needed.

Part of interest: Pp. 2-28.

Target groups: Providers, Professionals, Patients, CSOs, Business innovation

The PRISMA Project involved social science researchers and technologists from five different research organisations around the EU talking to eight technology projects about Responsible Research and Innovation (RRI). The goal was to draw specific lessons about how RRI can be implemented in practice in the industry. The document presents two different approaches in embedding RRI: an approach focused on external support to the industry; and an approach based on the embedding of ethicists in the research team. The document contains in its normative part, some legal and ethical aspects that have to be taken into consideration in the ICT co-creation and innovation activities, such as privacy protection and use of personal data; data ownership; transparency and open access; democratic consent; distribution of risk and harm; and sustainability.

Part of interest: the part on the social and ethical aspects related to innovation (Pp. 9-15).

Target groups: RPOs, Innovation Business

This document, drafted in the framework of CAREABLE Project (Deliverable D6.1.), is focusing on privacy and data protection, intellectual property legal framework, liability, and medical devices, and ethics to be taken into account in the innovation process in health. Careables.org online platform represents a central hub for sharing knowledge for reproduction and self-creation of customised healthcare solutions, where individuals with particular needs, healthcare professionals, makers, designers, donors, and co-founders work collaboratively online in order to create custom-made healthcare solutions. The resource contains an inventory of ethical and legal rules that have to be considered in healthcare innovation and creation.

Part of interest: The entire document.

Target groups: Patients and CSOs, Policy Makers, Providers, Professionals, Innovation business, Payers, RPO

This is the framework on ethical impact assessment defined by SATORI Project and approved by the European Committee for Standardisation by a CEN Workshop agreement CWA17145-2. The framework is focused on innovation and it has been developed on the basis of an analysis of existing research practices and their results. It consists of two parts. Part 1 makes recommendations for the composition, role, functioning, and procedures of ethics committees. Part 2 provides researchers and organisations with guidance on an ethical impact assessment; a comprehensive approach for ethically assessing the actual and potential mid- and long-term impacts of research and innovation on society. The document contains also terms and definitions; a description of the phases of ethical assessment and of the possible tools to be used.

Part of interest: See in particular part 2.

Target groups: Innovation Business, RPOs

This Manual has been drafted by the ADAPT Centre & Trinity College Dublin and the Dublin City University (by Lewis, Reijers, Pandit) in 2017. The Manual allows researchers to reflect on the ethical impacts of their works by using the provided forms and templates. In particular, it might help to brainstorm about the ethical implications of a project and representing them in a Canvas; to analyse the ethical concerns of a project and find a similar solution. It contains also the proposal to join the Ethics Canvas community. There is also an online version of the Ethics Canvas Manual.

Part of interest: The entire document.

Target groups: Innovation business, RPOs

This UNI/PdR sets out all useful criteria so that the organisations may carry out the innovation process in a responsible manner, i.e., aimed at the improvement of the quality of life, according to the interested parties’ expectations, and at the same time be environmentally, socially and economically sustainable. The approach is based on the following principles: description of the phases; risk management; applying the precautionary principle; identifying, reviewing, and managing the indicators; identifying the objectives; reviewing the performance of indicators; the relationships with all the actors involved in the innovation value chain; dissemination.

Part of interest: The entire document. It contains also the templates and questionnaires to be used for applying it.

Target groups: Innovation business, RPOs

The guidelines describe the most frequent legal and regulatory challenges of European SMEs, with particular regard, among others, to privacy protection and GDPR requirements and IPR. This is one of the smart guides provided by eHealth Hub.

Part of interest: The entire document.

Target groups: Innovation Business, RPOs, Start-ups

InFieri is a research program that focuses on Responsible Innovation in Health (RIH) carried out by the University of Montreal in Canada (Quebec, Ontario) and in Brazil (state of São Paulo). The RIH Assessment Tool was developed and validated by InFieri to assess responsibility in health innovation. In particular, it might be used by policymakers and providers to assess whether an innovation qualifies as a Responsible Innovation in Health (RIH). A User Guide has been developed to facilitate the application of the Tool. Drawing on RRI and health policy research, the RIH Tool entails a three-step process: screening, assessment, and rating. The value domains and attributes used for the assessment of innovation includes among others, also, ethical, legal, and social issues; health inequalities; frugality; eco-responsibility; inclusiveness.

Part of interest: The entire tool.

Target groups: Policymakers, Providers, Innovation business, RPOs

The document presents how the thematic Lab on biomedicine was run in Spain for the biomedicine sector, in the framework of Innovation Compass Project (Deliverable D2.4). The Lab consisted in a series of online and in-person meetings to develop a sectorial roadmap to help SMEs in the health sector to embed RRI in their practices. An important central issue of the Lab on Biomedicine is the ethical imperative of care and to recognise the need to afford greater choice for people in managing their health (and their access to technologies that help them do this). Such issues are noted as impacting on the designs of products (e.g., ‘safe by design’) and service configurations whereby users (patients) are empowered. It follows then, that the roadmap requires companies to have and implement appropriate codes of practice that help to embed an appropriate service ethos – and that related technologies are designed to support this.

Part of interest: In particular, the Roadmap.

Target groups: Innovation Business

The Project My Health My data (this resource is the Deliverable D7.4) is focused on a new paradigm in Data privacy e data security in Health and in particular on Blockchain technology for innovation in (digital) health and privacy, preserving big data technologies in health. Issues of data subjects’ privacy and data security represent a crucial challenge in the biomedical sector more than in other industries. The current IT landscape in this field shows a myriad of isolated, locally hosted patient data repositories. MyHealthMyData (MHMD) aims at changing the existing scenario by introducing a distributed, peer-to-peer architecture, based on Blockchain and Personal Data Accounts. The document presents the results of a consultation of users/citizens about their needs and expectations on the new approach on health data by citizens. This resource might provide suggestions to be taken into account in setting up, implementing innovation and tools requiring the collection and management of citizen health data.

Part of interest: The entire document.

Target groups: Providers, Professionals, Patients and CSOs, Innovation business, RPOs